My week this week hasnt been spent sitting bed looking longingly out the window, and i havent once had my dog whine at me with his leash in his mouth waiting to go for a walk like the drug commercials depict. I dont take a pill and suddenly im playing with the kids and playing fetch at the park it doesnt work that way. I smile i laugh im me in every way from a bystanders point of view. Internally i feel nothing, i feel the world spinning away from me, i feel my friends creating a gap that slowly enlarges with each fake laugh i try to force out when were together.
CF kills my lungs, it destroys my pancreas, my kidneys are shot and my liver is hanging on for dear life (although my days of parties and bar hopping probably had a bigger impact on that than CF ever could). I cant blame CF for this recent mental unbalance and constant need for reassurance directly but i suspect it played a part.
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loving a Mississippi river view on a beautiful morning! |
I have moments when i see my little sisters (which is too far and few between for my liking) and the laughter becomes genuine. Spending weekends being totally comfortable with who i am because while we dont see each other often i feel a comfort in being in their presence. I feel like they accept me and all of my quirks. "I like you because your so weird." said Jenny a few weeks ago, and i felt that i am weird, im different from most, i dont have the views and opinions of most and my hobbies and interests are not considered normal, yet this was the greatest compliment ive ever Enjoying a received
I have moments where one person can make me feel like a celebrity in my own little way. I have a best friends Grandma who was so genuinely excited to meet me it melted my heart right out of my chest. Enjoying a glass of wine and a conversation with her lifted me up in a way i havent felt in some time and i truly hope that i see her again.
These moments are the ones that keep me on he ground. When my mind races so fast it could propel me straight into the atmosphere. Its going to be work. I need to be proactive and put myself out there, i need to surround myself with these seemingly small yet grand plans that lift me up. Pills help, im not saying theyre worthless but its up to me in the end. I know im strong, i know i have potential, and i know that when motivation strikes im unstoppable in every way. My last few weeks have been a roller coaster, but im never one to turn down a ride. I will beat this, i will persevere, and i will win.
I guarantee this.
1 comment:
Rachel,
You have more magic than any celebrity. I was so impressed with you. Looking forward to seeing you again. Love you, Pat
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