Well im ecstatic that my PICC was pulled just now seeing as it was driving me CRAZY!! I think i might have started to develop an allergy to the tegaderm dressing or the chloraprep (cleaner they use) because although my lines are never comfortable this one was almost unbearable, it kept me up at night and i thought i was gonna scratch my arm right off :( Soooo glad its gone, however it hit me last night as i was trying to catch my breath while walking through my apartment, that i was trying to catch my breath while walking through my apartment....
Allow me to explain- June of this year i went to the Apostle Islands thanks to my super amazing wonderful sister who surprised me with a trip she knew i wanted to do before it got too hard for me. I wanted to kayak through the sea caves on lake superior so badly and she planned a whole vacation, drove 8 hours, rented an incredible cabin with a private dock, planned hiking trails (one with a pretty waterfall you could go behind (see bottom of page for said happy times), fished with me in a half deflated raft, and paddled her superstar ass off in a kayak in a rain storm in 40 degree water so that i could do it. Words cant describe how much fun i had and how lucky i feel i saw something so beautiful and got to spend a few days just hanging out with my family and what that meant to me is priceless. I hiked up to 5 miles uphill most of the way and i ran and was able to kayak through the waves and i felt good. I felt really really good. Now its 5 months later, my lung function is a mere 28% and after 2 weeks of IV antibiotics and a 5 day hospitalization im still gasping for air while trying to sweep my living room floor. Its disappointing to say the very least. This is the first time that ive finished a course of treatment and still feel short of breath. Usually i feel unstoppable and this time i just feel the same. I knew this day would come, when i didnt come back like i used to after antibiotics, but i didnt think it would be at 23. Looking back on how my life was not only a few years ago but just back in June is heart breaking for me. What else will i have to give up? I live for weekends out with my friends dancing and having fun but im scared those days are coming to an end soon as well...Scary stuff!
Allow me to explain- June of this year i went to the Apostle Islands thanks to my super amazing wonderful sister who surprised me with a trip she knew i wanted to do before it got too hard for me. I wanted to kayak through the sea caves on lake superior so badly and she planned a whole vacation, drove 8 hours, rented an incredible cabin with a private dock, planned hiking trails (one with a pretty waterfall you could go behind (see bottom of page for said happy times), fished with me in a half deflated raft, and paddled her superstar ass off in a kayak in a rain storm in 40 degree water so that i could do it. Words cant describe how much fun i had and how lucky i feel i saw something so beautiful and got to spend a few days just hanging out with my family and what that meant to me is priceless. I hiked up to 5 miles uphill most of the way and i ran and was able to kayak through the waves and i felt good. I felt really really good. Now its 5 months later, my lung function is a mere 28% and after 2 weeks of IV antibiotics and a 5 day hospitalization im still gasping for air while trying to sweep my living room floor. Its disappointing to say the very least. This is the first time that ive finished a course of treatment and still feel short of breath. Usually i feel unstoppable and this time i just feel the same. I knew this day would come, when i didnt come back like i used to after antibiotics, but i didnt think it would be at 23. Looking back on how my life was not only a few years ago but just back in June is heart breaking for me. What else will i have to give up? I live for weekends out with my friends dancing and having fun but im scared those days are coming to an end soon as well...Scary stuff!
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