First posts are hard, im never sure what to say, like in the about me sections of websites. Its a strange area do i jump in with my life story or go for background info? Well i think im gonna not worry about any of that, i think im gonna write for me, and im gonna write about me whatever i decide that is that day. Ill jump, weather its a post about my high school prom or what happened to me at the car wash yesterday morning because im here to leave my story somewhere besides in my mind. Im here because of Cystic Fibrosis. To leave something behind, Proof that i was important somehow, someway. Proof that what i did mattered. To tell someone, anyone about all the things that ive done. Put into writing that my life wasnt completely wasted in hospital beds, and because i think writing about what i do and what my life is like might help someone else out there or even myself. So here we go. Quick intro. My name is Rachel and im turning 23 this month on the 30th, i live just outside of Chicago with my babies (a puppy named Nighthawk and a cat named Scalawag) Cystic Fibrosis is a terrible disease that effects almost every part of my body but mostly my lungs, they are slowly giving up on me and the medicine i take to slow down the process has been slowly losing effect as well. I cant digest food without the 30 pills i take daily. I spend hours doing inhaled medicines each day and i use oxygen at night and on hot days, if im not feeling well its a 24 hour need. With small colds come aches and pains that make the smallest movements impossible and usually hospitalizations, and pretty soon i will need a lung transplant. Cystic Fibrosis is the main part of my life and its taken so much from me. Trying to live my life get a little rough at times especially missing birthdays and holidays, but i am blessed with truly amazing family and friends to get through it.
That all being said its also given me a chance at life not many people get. I live every day like its my last and i travel and take on experiences when i can because i don't have the luxury of putting it off for another time. I have filled my life with memories and trips that most people only dream of. I really am blessed, and im excited to put my life down in writing.
Ready?! GO!
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